On Sunday December 18th, 2011 at 2pm the Peterborough Petes will be showing their support in the fight for a Cure for Cystic Fibrosis. These talented young men are learning about Cystic Fibrosis and showing their support by doing what they do best…playing hockey.
Please show your support for Cystic Fibrosis on Dec 18th and purchase a ticket and remember in order for Cystic Fibrosis Canada to receive the $4.00 donation per ticket you must say the code word CF when purchasing your $16.00 ticket.
Tickets for this Sunday afternoons game that are purchased using the code CF will automatically donate $4.00 back to Cystic Fibrosis Canada.
There will be a silent auction and awareness videos about Cystic Fibrosis at the game. The Peterborough Petes will be hosting a skate with the Petes right after the game, so come on out and bring the kids! Donations for the skate are not required, but are appreciated.
Cystic fibrosis is the most common, fatal genetic disease affecting children and young adults in Canada. There is no cure for Cystic Fibrosis, and children with this disease struggle every day to have a normal childhood.
Support families affected by CF in Peterborough and the surrounding areas by coming out to the Pete’s game this Sunday. All funds raised through tickets sales, Silent Auction, donations and sponsorship go directly to research initiatives and specialized clinics for those who suffer from this fatal disease.
Families like the Romanelli family of Peterborough. Anthony Romanelli’s parents have been fighting this devastating disease since their son was first diagnosed in the fall of 2008, shortly after his second birthday. He follows a demanding daily routine of physical and inhalation therapy to keep his lungs free from infections. This 5 year old must consume a large number of enzymes, about 20 pills each day, to help his body absorb nutrients from food, and, like thousands of families affected by CF across Canada, Anthony’s parents spend every night dreaming of the day a cure is found.
Kenny and Nick Grady are brothers 18 months apart. Nick the younger of the two was the first to be diagnosed with CF at the age of 14 months. Kenny’s diagnosis followed shortly afterward in 2000. Both boys had digestive and respiratory problems since birth and gaining weight was always a challenge.
Pam Grady and her family were scared they would lose the boys to this disease before they started school; after all that’s what happened 30 years ago.
Cure and treatment options are the focus of today’s brightest medical minds, but without financial support, they cannot progress and enhance their ideas to the next stages of development and trial.
“I have seen the devastation that cystic fibrosis can leave in its wake,” said Erin Sullivan, the volunteer Vice President of the Peterborough Chapter of the Cystic Fibrosis Canada. Sullivan also lives with CF. “I witness regularly, the effects of the illness on myself and my CF friends, many of whom have passed away and many who are currently in the hospital fighting to breathe. I have also had the privilege of witnessing the effect that fundraising has had in improving the length and quality of our lives. When the foundation began, most children with CF didn't survive long enough to attend school. I turned 32 this year, what Great Strides have been made thus far! Please join our chapter at this Peterborough Pete’s sponsored event and consider joining us for our Great Strides™ walk, coming up in May 2012. Step by step, you will be helping to fund the search for a cure, or control, for this fatal disease.”
For the CF community in Canada, research has proven to be the surest way to invest in a brighter future for children and young adults with cystic fibrosis, and the best way to keep hope alive. Cystic Fibrosis Canada also supports the Hospital for Sick Children in their specialized CF clinics which provides specialized care for people in our community with cystic fibrosis, and their families. Our non-profit organization receives no government funding so we depend on the financial generosity of our community members to fund the great minds of the future in research initiatives.
For more information about Cystic Fibrosis and how you can get involved in the fight against Cystic Fibrosis, please visit our website at www.cysticfibrosis.ca Secure, online donations can be made with most major credit cards, and all donations of $20, or more, will automatically receive a tax receipt.
